A mother of twin boys diagnosed with Duchenne Muscular Dystrophy says she'll continue to fight for access to a life-changing drug. Paula Naughton's eldest son Archie passed away from Duchenne aged just 16 in 2022. Archie's younger brothers, George and Isaac, who turned 16 last Friday, are currently living with the muscle wasting disease. Paula is calling for the drug, Givinostat, to be made available to her sons. The European Medicines Agency last year granted conditional authorisation for certain patients over the age of six. Speaking to Dan Dooner on Let's Talk today, Paula says it should be available to everyone:
Advertisement
News
PODCAST: Join Our Boys update as George and Isaac turn 16
May 6, 2026 17:27
Paula Naughton's eldest son Archie passed away from Duchenne aged just 16 in 2022.
Advertisement
Tags used in this article
Recent Articles
Council gives the go ahead for redevelopment of Boyle Post Office
Jul 22, 2026 17:41
Longford councillor calls for resolution to row over solicitors' fees
Jul 22, 2026 17:10
Bishop of Elphin pays tribute to retiring Roscommon priest
Jul 22, 2026 17:05
Advertisement
Advertisement
Shannonside Newsletter
Sign up now to keep up to date with the latest news.
1e, Mastertech Business Park
Athlone Rd, Townparks,
Longford, Ireland
Eircode: N39 RR67
Athlone Rd, Townparks,
Longford, Ireland
Eircode: N39 RR67
Copyright © 2026 Shannonside FM. Developed by Square1 and Powered by PublisherPlus