A mother of twin boys diagnosed with Duchenne Muscular Dystrophy says she'll continue to fight for access to a life-changing drug. Paula Naughton's eldest son Archie passed away from Duchenne aged just 16 in 2022. Archie's younger brothers, George and Isaac, who turned 16 last Friday, are currently living with the muscle wasting disease. Paula is calling for the drug, Givinostat, to be made available to her sons. The European Medicines Agency last year granted conditional authorisation for certain patients over the age of six. Speaking to Dan Dooner on Let's Talk today, Paula says it should be available to everyone:
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May 6, 2026 17:27
Paula Naughton's eldest son Archie passed away from Duchenne aged just 16 in 2022.
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