People across the Shannonside Northern Sound region are being asked to lobby politicians for change to the allocation of resources for children with physical challenges.
A Roscommon mother of three boys with DMD says it's incredible that supports such as the installation of a shower or other physical improvements to a house are based on a means test rather than medical or physical need.
Today is world Duchenne Muscular Dystrophy Awareness day.
Paula Naughten has three sons, 15 year old Archie, and 11 year old twins George and Issac.
All three have the progressive muscle wasting disease for which there is no treatment and no cure.
The Join Our Boys Trust is halfway through a three month challenge.
It's to raise the remaining funds needed to supply equipment for a purpose-built house for the boys, who all now use wheelchairs.
The house will be passed on to other families who need its facilities in the future.
Paula Naughten told today's Let's Talk that it would be life changing.
You can hear the full interview with Paula speaking to MaryClaire Grealy on Let's Talk here.
