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The Joe Finnegan Show

''Really Happy'' 10 year old Grace reacts to HSE funding for drug

Apr 5, 2018 13:36
By Denise Canavan
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''Really Happy'' 10 year old Grace reacts to HSE funding for drug

After months of intensive lobbying, the HSE has agreed to fund specialised treatment for 10 year old Grace McIntyre from County Leitrim.

Grace suffers from Morquio - a rare metabolic disease which causes lifelong problems such as heart disease, skeletal abnormalities and respiratory issues.

Grace's mum Barbara got the call from the metabolic unit in Temple street and says they were so happy to get the good news - she had kept us updated about the campaign on the show in recent months.

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Barbara and Grace spoke to us on the show on Thursday.

Grace told us she was ''really happy'' about the news ...

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