The Health Service Executive is being asked to consider providing appropriate residential care for a Longford man with Huntington’s disease.
Joe Doran is receiving personal assistant support for 15 hours a week, daycare and respite, but with the progression of the disease, the requirement for residential care is increasing.
Bloomfield House in Dublin provides specialist care for people with Huntington’s but the HSE is offering a six weeks assessment in St Josephs’ in Longford.
Joe’s family has stated that it would be more cost-effective to provide care in the specialist centre, rather than include all the supports needed for him in a centre for older people.
Liz O’Sullivan, a psychotherapist with the Huntington’s Association says there’s a marked difference in patients’ progress in a specialist centre compared to an inappropriate setting.
To hear the full interview with Liz, listen here.
Listen here to Pauline Doran on how Joe is doing now.